To serve and protect? Electronic health records pose challenges for privacy, autonomy and person-centered medicine
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. Goldberg D. Access denied: HIPAA, HITECH mandate need-to-know for retrieving EMR files. Dermatology Times. 2011.
. The Health Insurance Portability and Accountability Act (HIPAA) of 1996. Pub. L. No. 104-191. Accessed January 13, 2011, http://healthit.hhs.gov/portal/server.pt/community/healthit_hhs_gov__home/1204
. Guthrie, J. (2003). Time is running out - the burdens and challenges of HIPAA compliance: A look at preemption analysis, the minimum necessary standard, and the notice of privacy practices. Annals of Health Law 12, 143-178.
. Darves, B. (2003). From minor annoyances to treatment delays, physicians feeling fallout of HIPAA privacy law. ACP Observer.
. McIntosh, M. (2007) Healthcare applications and HIPAA [2007 May 4; cited 2011 Jan 2]. Available from: http://citebm.business.illinois.edu/TWC%20Class/Project_reports_Spring2007/HIPAA/mtmcinto/McIntosh.pdf.
. Rothstein, M.A. and Talbott, M.K. (2006). Compelled disclosure of health information: Protecting against the greatest potential threat to privacy. Journal of the American Medical Association. 295, 2882-2885.
. Steinbrook, R. (2008) Personally controlled online health data: The next big thing in medical care? New England Journal of Medicine 258,1653-1656.
. Obama, B. Remarks of President Barack Obama– as prepared for delivery address to joint session of Congress. [document on the internet]; 2009 Feb 24. Available from: http://www.whitehouse.gov/the_press_office/Remarks-of-President-Barack-Obama-Address-to-Joint-Session-of-Congress.
. Health Information Technology for Economic and Clinical Health Act (HITECH). [cited: 2011 Jan 2]. Available at: http://healthit.hhs.gov/portal/server.pt/community/healthit_hhs_gov__home/1204
. U.S. Department of Health and Health Services. Enforcement data. 2009; [2011 Jan 2]. Available at: http://www.hhs.gov/ocr/privacy/hipaa/enforcement/highlights/index.html.
. Hall, M.A. and Schulman, K.A. (2009) Ownership of medical information. Journal of the American Medical Association 301, 1282-1284.
. Gunter, T.D. and Terry, N.P. (2005). The emergence of national electronic health record architectures in the United States and Australia: Models, costs, and questions. Journal of Medical Internet Research 7, e3.
. Rosenbaum, J.I. (1998) Privacy on the internet: whose information is it anyway. Jurimetrics 38, 565-568.
. Organisation for Economic Co-operation and Development. The Security Economy. Washington DC: OECD Publishing; 2004. [cited: 2011 Jan 2]. Available from: http://www.oecd.org/dataoecd/14/17/16692437.pdf
. Lee, L.M., Gostin, L.O. (2009) Ethical collection, storage, and use of public health data: a proposal for a national privacy protection. Journal of the American Medical Association 302, 82-84.
. Baldwin, R.W. (1962) Confidentiality between physician and patient. Maryland Law Review 22 (3).
. Wynia, M.K., Coughlin, S.S., Alpert, S., Cummins, D.S., Emanuel, L.L. (2001) Shared expectations for protection of identifiable health care information. Journal of General Internal Medicine 16, 100-111.
. Blumenthal, D. and Tavenner, M. (2010) The “Meaningful Use” Regulation for Electronic Health Records. New England Journal of Medicine 363 (6), 501-504.
. Pfeiffer, K. (2009) Future development of medical informatics from the viewpoint of health telematics. Methods of Information in Medicine 48, 55-61.
. Walker, J., Ahern, D., Le, L.X. and Delbanco, T. (2009) Insights for internists: “I want the computer to know who I am.” Journal of General Internal Medicine 24, 727-732.
. Box, T.L., McDonnell, M., Helfrich, C.D., Jesse, R.L., Fihn, S.D. and Rumsfeld, J.S. (2010) Strategies from a nationwide health information technology implementation: The VA CART STORY. Journal of General Internal Medicine 25, 72-76.
. Jing, J., Ahn, G.J., Hu, H., Covington, M.J. et al. (2011) Patient-centric authorization framework for electronic healthcare services. Computers & Security. 30, 116-127.
. Mandl, K.D. and Kohane, I.S. (2008) Tectonic shifts in the health information economy. New England Journal of Medicine 358, 1732-1737.
. Kim, E., Stolyar, A., Lober, W.B. et al. (2009) Challenges to using an electronic personal health record by a low-income elderly population. Journal of Medical Internet Research 11, e44.
. Wiljer, D., Urowitz, E.A., DeLenardo, C. et al. (2008) Patient accessible electronic health records: exploring recommendations for successful implementation strategies. Journal of Medical Internet Research 10, e34.
. Acheson, H.W.K (1974). Confidentiality in general practice. Journal of the Royal College of General Practitioners 24, 194-195.
. Winfried, E.K. (1995) A paradigm for user-defined security policies. Proceedings of the 14th Symposium on Reliable Distributed Systems. pp135–144.
. Kenny, D.J. (1982). Confidentiality: the confusion continues. Journal of Medical Ethics 8, 9-11.
. Patterson, A.R., Robinson, L.D., Naftalis, E.Z., Haley, B.B. and Tomlinson, G.E. (2005). Custodianship of genetic information: clinical challenges and professional responsibility.
Journal of Clinical Oncology 23, 2100-2104.
. Thaler, R.H. and Sunstein, C.R. (2008). Nudge: Improving Decisions about Health, Wealth and Happiness. New Haven (CT): Yale University Press
. Thadani, S.R., Weng, C., Bigger, J.T., Ennever, J.F. and Wajngurt, D. (2009). Electronic screening improves efficiency in clinical trial recruitment. Journal of the American Medical Informatics Association 16, 869-873.
. Wright, A., McGlinchey, E.A., Poon, E.G., Jenter, C.A., Bates, D.W. and Simon, S.R. (2009) Ability to generate patient registries among practices with and without electronic health records. Journal of Medical Internet Research 11, e31.