Information sharing within an early intervention person-centered service for children with disabilities: A team’s perspective.

Main Article Content

Clare Carroll

Abstract

Background: At the core of successful interdisciplinary teamwork is information sharing. There is limited literature on the evaluation of integrated care services in terms of information sharing between service providers and families. This study explored the experiences of families, professionals and managers of information sharing within an early intervention service and aimed to identify the facilitators and challenges to this information sharing process. Methods: Data were collected qualitatively through 13 semi-structured interviews using the principles of grounded theory. The participants included six families, four team professionals and three managers who were all involved with an early intervention team in Ireland. Results: Although perceptions varied across participants, there was dissatisfaction with the early intervention. The participants identified ad hoc and systemic facilitators; systemic barriers and systemic gaps to the information sharing process. Although a framework and guidelines were in place for information sharing, its implementation was uncoordinated. Conclusions: There is a need for greater family participation in the information sharing process and for greater collaboration between service providers and families in the area of early intervention. There is a need for integrated, participatory and inclusive health care practices in order to increase the person-centeredness of services.

Article Details

Section
Regular Articles
Author Biography

Clare Carroll, National University of Ireland, Galway

Lecturer in Speech and Language Therapy at NUI, Galway in Ireland.

References

Guralnick, M.J. (2005). The Developmental Systems approach to early intervention. Baltimore: Paul H. Brookes Publishing.

McGonigel, M., Woodruff, G. & Roszmann-Millican, M. (1994). The transdisciplinary team: A model for family centred early intervention. In: Meeting the early intervention challenge; Issues from birth to three (eds. L.R. Johnson, R.J. Gallagher & M.J. Lamontagne). Baltimore: Paul H. Brookes.

Guralnick, M. & Albertini, G. (2006). Early Intervention in an International Perspective. Journal of Policy and Practice in Intellectual Disabilities 3, 1–2.

European Agency for Development in Special Needs Education. (2005). Early Childhood Intervention Analysis of Situations in Europe. Key Aspects and Recommendations. Summary Report. Available at: http://www.european-agency.org

Guralnick, M.J. (2005). The Developmental Systems approach to early intervention. Baltimore: Paul H. Brookes Publishing.

Bailey, D. B., Hebbeler, K., Scarborough, A., Spiker, D. & Sangeeta, M. (2004). First experiences with early intervention: a national perspective. Paediatrics 113, 887-896.

Carpenter, B. & Russell, P. (2005). Early Intervention in the United Kingdom: Current Policy and Practice. In: The Developmental Systems Approach to Early Intervention (ed. M.J. Guralnick), pp. 455-480. Baltimore: Paul Brookes Publishing.

Summers, J.A., Marquis, J., Mannan, H., Turnbull, A.P., Flemming, K., Poston, D.J., Wang, M. & Kupzyk, K. (2007). Relationships of perceived adequacy of services, family-professional partnerships, and family quality of life in early childhood service programmes. International Journal of Disability, Development and Education 54, 319-338.

Blackman, J. A. (2002). Early intervention: A global perspective. Infants and Young Children 15, 11–19.

Tagliaventi, M. & Mattarelli, E. (2006). The role of networks of practice, value sharing, and operational proximity in knowledge flows between professional groups. Human Relations 59, 291-319.

Freeman, T. & Peck, E. (2006). Evaluating partnerships: a case study of integrated specialist mental health services. Health and Social Care in the Community 14, 408-417.

Tagliaventi, M. & Mattarelli, E. (2006). The role of networks of practice, value sharing, and operational proximity in knowledge flows between professional groups. Human Relations 59, 291-319.

Katechakis, D. (2002). An open, component-based information infrastructure for integrated health information networks. International Journal of Medical Informatics 68, 3-26.

Halamka, J., Overhage, J.M., Ricciardi, L., Rishel, W., Shirkey, C. & Diamond, C. (2005). Exchanging Information: Local distribution, national coordination. As more communities develop information-sharing networks, a coordinated approach is essential for linking these networks. Health Affairs Millwood 24, 1170-1179.

Richardson, S. & Asthana, S. (2006). Inter-agency Information Sharing in Health and Social Care Services: The Role of Professional Culture. British Journal of Social Work 36, 657-669.

Hebert, R. and Veil, A. (2004). Monitoring the degree of implementation of an integrated delivery system. International Journal of Integrated Care 4, 1-7.

Ma, C. (2005). Empowering patients with essential information and communication support in the context of diabetes. International Journal of Medical Informatics 75, 577-596.

Rapaport, J., Bellringer, S., Pinfold, V. & Huxley, P. (2006). Carers and confidentiality in mental health: considering the role of the carer’s assistant: a study of service users’, carers’ and practitioners’ views. Health and Social Care in the Community 14 (4), 357- 365.

Department of Health and Children (2005). Quality Customer Service Action Plan. 2005-2007. Stationary Office, Dublin.

Tucker, H., Larkin, V. & Martin, M. (2005). The ICON model - progress on a case study for developing integrated care in Ireland. Journal of Integrated Care 13, 14-19.

Richardson, S. & Asthana, S. (2006). Inter-agency Information Sharing in Health and Social Care Services: The Role of Professional Culture. British Journal of Social Work 36, 657-669.

Skeat, J. & Perry, A. (2008). Grounded theory as a method for research in speech and language therapy. International Journal of Language and Communication Disorders 43, 95-109.

Guralnick, M. & Albertini, G. (2006). Early Intervention in an International Perspective. Journal of Policy and Practice in Intellectual Disabilities 3, 1–2.

Richardson, S. & Asthana, S. (2006). Inter-agency Information Sharing in Health and Social Care Services: The Role of Professional Culture. British Journal of Social Work 36, 657-669.

Tagliaventi, M. & Mattarelli, E. (2006). The role of networks of practice, value sharing, and operational proximity in knowledge flows between professional groups. Human Relations 59, 291-319.

Molyneax, J. (2001). Interprofessional teamworking: what makes teams work well? Journal of Interprofessional Care 15 (1), 29-35.

Tagliaventi, M. & Mattarelli, E. (2006). The role of networks of practice, value sharing, and operational proximity in knowledge flows between professional groups. Human Relations 59, 291-319.

Katechakis, D. (2002). An open, component-based information infrastructure for integrated health information networks. International Journal of Medical Informatics 68, 3-26.

Rapaport, J., Bellringer, S., Pinfold, V. & Huxley, P. (2006). Carers and confidentiality in mental health: considering the role of the carer’s assistant: a study of service users’, carers’ and practitioners’ views. Health and Social Care in the Community 14 (4), 357- 365.

Coulter, A., Entwistle, V. & Gilbert, D. (1999). Sharing Decisions with patients: is the information good enough? British Medical Journal 318 (7179), 318-322