Background, Structure and Priorities of the 2013 Geneva Declaration on Person-centered Health Research

Main Article Content

Luis Salvador-Carulla
C Robert Cloninger
Amalia Thornicroft
Juan Mezzich
2013 Geneva Declaration Consultation Group

Abstract

Declarations are relevant tools to frame new areas in health care, to raise awareness and to facilitate knowledge-to-action. The International College on Person Centered Medicine (ICPCM) is seeking to extend the impact of the ICPCM Conference Series by producing a declaration on every main topic. The aim of this paper is to describe the development of the 2013 Geneva Declaration on Person-centered Health Research and to provide additional information on the research priority areas identified during this iterative process. There is a need for more PCM research and for the incorporation of the PCM approach into general health research. Main areas of research focus include: Conceptual, terminological, and ontological issues; research to enhance the empirical evidence of PCM main components such as PCM informed clinical communication; PCM-based diagnostic models; person-centered care and interventions; and people-centered care, research on training and curriculum development. Dissemination and implementation of PCM knowledge-base is integral to Person-centered Health Research and shall engage currently available scientific and translational dissemination tools such journals, events and eHealth.

Article Details

Section
Regular Articles
Author Biography

Luis Salvador-Carulla, University of Cadiz; and Spanish Association for Research on Healthy Ageing (AECES)

Dr Luis Salvador-Carulla is professor of Psychiatry at the University of Cadiz (Spain). He has been member of the Advisory Board on disability and dependency of the regional government of Catalonia (Spain) and he is member of the advisory committee of the national strategy on Mental Health at the Ministry of Health and Social Policy. His field of interest is integrated support decision systems and policy in long-term care. He is honour member of the World Psychiatry Association and secretary of its section “Classification, Diagnostic assessment and Nomenclature”. He is also President of the PSICOST research association, and the Spanish Association on Scientific Research on Healthy Aging (AECES), as well as Vice-president of the Spanish Society of Epidemiological Psychiatry (SEEP). Dr. Salvador-Carulla has intensively participated in the development of international research networks in the fields mentioned as well as in social inclusion, person centered medicine, healthy ageing and bridging and knowledge transfer between the fields of disability and ageing. He has also collaborated with the European Commission (EC) and the World Health Organisation  (WHO) as external advisor. He coordinated the European Commission project eDESDE-LTC for the development of an European coding system for long term care, and he participates now on the EC project Refinement for analysing financing, quality and effectiveness of mental health systems in Europe. He chairs the WHO working group on the classification of intellectual disabilities at chapter V of the International Classification of Diseases (ICD-11).

References

. Mezzich JE, Salloum IM, Cloninger CR, Salvador-Carulla L, Kirmayer LJ, Banzato CE, Wallcraft J, Botbol M. Person-centred integrative diagnosis: conceptual bases and structural model. Can J Psychiatry. 2010;55(11):701-8.

. Salloum, I. M. and J. E. Mezzich. Outlining the bases of person-centred integrative diagnosis. J Eval Clin Pract, 2011; 17(2): 354-356.

. Singer B, Ryff C. New horizons in health: an integrative approach. Washington, D.C.: National Academy Press; 2001.

. Edgren L. The meaning of integrated care: a systems approach. International Journal of Integrated Care 2008 Oct 23;8. Available from: http://www.ijic.org/.

. Wagner E, Austin B, Von Korff M. Organizing care for patients with chronic illness. Milbank Quarterly, 1996; 74:511–544.

. Salvador-Carulla L, Putnam M, Bigby C, Heller T. Advancing a research agenda for bridging ageing and disability. Int J Integr Care. 2012 Nov 16;12:e204.

. Savigny D, Adams T: Systems thinking for health systems strengthening. Geneve: World Health Organization 2009.

. Gibert K, García-Alonso C, Salvador-Carulla L. Integrating clinicians, knowledge and data: expert-based cooperative analysis in healthcare decision support. Health Res Policy Syst. 2010; 8:28

. Salvador-Carulla L, Hernández-Peña P. Economic context analysis in mental health care. Usability of health financing and cost of illness studies for international comparisons. Epidemiol Psychiatr Sci. 2011;20(1):19-27.

. Vallotton MB. Council for International Organizations of Medical Sciences perspectives: protecting persons through international ethics guidelines. International Journal of Integrated Care, 2010.

. Carlson RV, Boyd KM, Webb DJ. The revision of the Declaration of Helsinki: past, present and future. Br J Clin Pharmacol. 2004 Jun;57(6):695-713.

. International College of Person-centered Medicine. Geneva Declaration on Person-centered Care for Chronic Diseases, 2012; 2(2): 153-154

. Miles A, Mezzich JE. Person-centered medicine: addressing chronic illness and promoting future health. International Journal of Person Centered Medicine 2012, 2 (2): 149-152.

. Mezzich JE, Snaedal J,van Weel C , Botbol M, Salloum I, van Lerberghe W. Articulating Person-centered Medicine and People-centered Public Health: A Report from the Fourth Geneva Conference. World Medical Journal, 2011; 57: 171-174.

. Mezzich JE, Appleyard J. Continuing development of person centered medicine and addressing chronic disease. International Journal of Person Centered Medicine 2013; 3: 1-4

. Sanchez D, Batet M, Valls A et al. Ontology-driven web-based semantic similarity. J Intell Inform Syst 2010;35:383-413.

. Salvador-Carulla L, Mezzich JE. Person-centred medicine and mental health. Epidemiol Psychiatr Sci. 2012; 21(2):131-7.

. Nolte E, Knai C, McKee M. Managing chronic conditions Experience in eight countries. Geneva: World Health Organization- European Regional Office, on behalf of the European Observatory on Health Systems and Policies, 2008.

. Sturmberg JP. Caring for people with chronic disease: is 'muddling through' the best way to handle the multiple complexities? J Eval Clin Pract. 2012;18(6):1220-5.

. Cloninger CR, Cloninger KM. Person-centered therapeutics. International Journal of Person-centered Medicine, 2011a; 1(1): 43-52.

. Cloninger CR. Salloum IM, Mezzich JE. The dynamic origins of positive health and wellbeing. International Journal of Person-centered Medicine, 2012; 2(2): 179-187

. Beddington, J., Cooper, C.L., Field, J., Goswami, U., Huppert, F.A., Jenkins, R., Jones, H.S., Kirkwood, T.B., Sahakian, B.J. & Thomas, S.M. The mental wealth of nations. Nature 2008; 455 (7216) 1057-1060.

. Raudonis BM, Daniel K. Frailty: an indication for palliative care. Geriatr Nurs. 2010;31(5):379-84.

. Lüthi H, Geyh S, Baumberger ME, Dokladal P, Scheuringer M, Mäder M, Cieza A. The individual experience of functioning and disability in Switzerland—patient perspective and person-centeredness in spinal cord injury. Spinal Cord. 2011;49(12):1173-81.

. Cloninger CR, Cloninger KM. Development of instruments and evaluative procedures for contributions to health and illness. International Journal of Person-centered Medicine, 2011b; 1(3): 446-455

. Cloninger CR. Spirituality and the Science of Feeling Good. South Med J, 2007; 100 (7):740-743.

. Bonelli RM, Koenig HG. Mental disorders, religion and spirituality 1990 to 2010: a systematic evidence-based review. J Relig Health. 2013 Jun;52(2):657-73

. Eisenberg L. Does social medicine still matter in an era of molecular medicine? J Urban Health. 1999 Jun;76(2):164-75.

. Cloninger CR, Abou-Saleh M, Mrazek DA, Moller HJ. Biological Perspective on Psychiatry for the Person. International Journal of Person-centered Medicine, 2011; 1(1),135-137

. Tasman A. Presidential Address: The Doctor-Patient Relationship. American Journal of Psychiatry 2000; 157, 1763-1768.

. Tibaldi G, Salvador-Carulla L, Garcia-Gutierrez JC. From Treatment Adherence to Advanced Shared Decision Making: New Professional Strategies and Attitudes In Mental Health Care. Current Clinical Pharmacology, 2011; 6(2):91-9.

. Hewitt-Taylor J, Bond CS. What e-patients want from the doctor-patient relationship: content analysis of posts on discussion boards. J Med Internet Res. 2012; 8;14(6):e155.

. Del Piccolo L, Goss C. People-centered care: new research needs and methods in doctor-patient communication. Challenges in mental health. Epidemiol Psychiatr Sci. 2012;21(2):145-9.

. Van Dulmen S, Humphris G, Eide H. Towards a guideline for person-centered research in clinical communication: Lessons learned from three countries. International Journal of Person Centered Medicine 2012, 2: 58-63.

. Salloum, I. M. and J. E. Mezzich: Person-centered diagnosis. Int J Integr Care, 2010; 10 Suppl: e027.

. Salloum, I. M. and J. E. Mezzich. Conceptual appraisal of the Person-centered Integrative Diagnosis Model." The International Journal of Person Centered Medicine, 2011; 1(1): 39-42.

. Ladd PD, Churchill AM. Person-centered diagnosis and treatment in mental health. A model for empowering clients. London: Jessica Kingsley Publ., 2012.

. Gask L, Klinkman M, Fortes S, Dowrick C. Capturing complexity: the case for a new classification system for mental disorders in primary care. Eur Psychiatry. 2008;23(7):469-76.

. Boot CR, Meijman FJ. Classifying health questions asked by the public using the ICPC-2 classification and a taxonomy of generic clinical questions: an empirical exploration of the feasibility. Health Commun. 2010;25(2):175-81.

. International Alliance of Patients’ Organizations (IAPO). Patient-Centred Healthcare Indicators Review. London: IAPO, 2012. www.patientsorganizations.org

. Olsson LE, Jakobsson Ung E, Swedberg K, Ekman I. Efficacy of person-centred care as an intervention in controlled trials - a systematic review. J Clin Nurs. 2013;22(3-4):456-65.

. Miles A, Mezzich JE: Advancing the global communication of scholarship and research for personalized healthcare: The International Journal of Person Centered Medicine. 1: 1-5, 2011.

. Mezzich JE: The Geneva Conferences and the emergence of the International Network of Person-centered Medicine. Journal of Evaluation in Clinical Practice 17: 333-336, 2011.

. Kirisci L, Reynolds M, Vanyukov M, Ridenour T, Hayes J, Mezzich JE: Developing an institutional information base and bibliographical clearinghouse. International Journal of Person Centered Medicine 1: 109-112, 2011.

. Kovacevic A, Dehghan A, Filannino M, Keane JA, Nenadic G. Combining rules and machine learning for extraction of temporal expressions and events from clinical narratives. J Am Med Inform Assoc. 2013 Apr 20. [Epub ahead of print]